Feedback needed: help develop an international guide to children’s palliative care

The Guide to Children’s Palliative Care is now in its 4th edition. It has been an essential document in the UK for all those with an interest in planning, funding and delivering services and care for babies, children, and young people with life-limiting and life-threatening conditions, and their families. It provides a 360-degree insight into children’s palliative care: what it is, its principles, purpose and importance to seriously ill children and families who need it.

The guide authors would like to develop an international version that is relevant on a global scale to help drive forward the development of children’s palliative care. They need your help to do this!

You’re invited you to take part in a short survey (10-15 mins) to gather some feedback about the Guide and what would be most helpful in your own country to help with the development of children’s palliative care services.

Prof Julia Downing, ICPCN Chief Executive said “We are excited to be working with our colleagues from Together for Short Lives and the EAPC children’s taskforce on this. We know that the Guide has been used in wide variety of countries, and look forward to receiving feedback on how you are using the Guide, and how we can adapt it for an international audience. Please do help us by completing the survey.”

Responses are welcome by 28th September.

Complete survey here

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