How the the quality of end of life care impacts upon the grieving process

Grief and bereavement are universal yet profoundly personal experiences. Anyone who loses a loved one goes through a process of bereavement wherein they are faced with integrating the significant life changes that accompany loss, all while challenged by the burden of grief.

Although death is an unavoidable aspect of aging, the impact on families when someone passes away in a residential aged care facility is often overlooked. Family caregivers are crucial in providing care and emotional support to older adults in these settings. Therefore, it’s vital to understand their experiences of grief and bereavement as they navigate these challenging times.

The ELDAC Project’s latest research, ‘The matter of grief, loss and bereavement in families of those living and dying in residential aged care setting: A systematic review’ indicates that because their period of bereavement begins when their loved one enters the care facility rather than after a death, families of people entering and living in residential aged care settings have complex and dynamic bereavement care needs.

Both the quality of end of life care provided to the resident and after death care influence family caregivers’ grief reactions. Recognising the emotional experiences and support needs of families and carers may enhance the understanding of the ageing, caring, dying, grieving pathway for older people and their families. Aged care staff should consider this as they involve the family in decision making strategies around advance care planning and educate them on death preparedness.

Grief and bereavement informed care reduces the burden of grief on families. To meet this need research entities and government agencies should work together in developing a comprehensive approach to grief, loss, and bereavement care in aged care settings.

Dr Priyanka Vandersman, Senior Research Fellow says, “Our hope is that by highlighting the support needs and the complexities involved in decision-making and transitions in residential aged care facilities, families and their loved ones are provided with holistic care that is effectively funded by the government and supported by the aged care and research sectors.”

The role of volunteers in grief and bereavement support
Expanding volunteer services into aged care settings can greatly enhance support for residents and their families. Volunteers that have been trained in palliative and end of life care are well equipped to provide support and can play a significant role in supporting individuals through grief and bereavement.

Volunteers offer companionship and emotional support. They can provide a listening ear, helping those in mourning feel heard and understood. Additionally, volunteers may be active in grief support groups and memorial services. Their presence offers comfort and help to individuals navigating the grieving process, making the journey a little less isolating during a challenging time.

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