Palliative Care NSW 2019 Election Platform
WHAT MATTERS MOST
When we talk about ‘What Matters Most’ in Palliative Care, we are talking about one of the most important times in a person’s life. What Matters Most to a person as they approach and reach the end of their life? What Matters Most to the family and friends of that person? What Matter Most to the people providing care to that person and their family?
What Matters Most is the knowledge that their needs and concerns will be addressed by a system built to support them. How do we make sure that everyone involved in a dying person’s life is an active participant in that supportive system?
We need to build a Palliative Care ‘Culture’ in New South Wales.
The current NSW Government has taken very welcome steps to ensuring that the people of NSW have access to quality care as they approach and reach the end of their lives. We welcome the injection of funds and the focus of NSW Health on palliative care in this state.
There’s more to do. Palliative Care New South Wales is writing to all candidates and Members of Parliament to ask you to look after your community when it comes to end of life care.
You can download our 2019 Election Platform. Palliative Care NSW is calling on the next NSW Government to address the recommendations to ensure that the people of NSW are able to access quality palliative and end of life care and support: the right care at the right time in the right place.
Our platform is available for download below.
2015 NSW State Election Call to Action
Every resident of NSW who is living with a life-limiting illness should be supported in choosing where they die. It could be in their own home. It could be in their Residential Aged Care Facility. In a long-term in-patient Palliative Care facility. In a hospital. Under a tree. But too few people have that choice. The NSW government has taken very welcome first steps to ensuring that you have the choice to die at home, if that is what you and your family want. There is more to do however to make genuine choice a reality for all and ensure a safe and dignified death for everyone.
WHAT IS NEEDED NOW
- Increased investment in Palliative Care by $8 million per year:
- $4 million per year to address current major gaps in Palliative Care services.
- $4 million per year to meet the growing need for Palliative Care.
WHAT IS NEEDED IN THE FUTURE
- An ongoing commitment to supporting real growth in the Palliative Care service system, including Specialist Palliative Care services in metro and rural/remote areas.
- Increased funding so that capacity growth is ahead of the ageing and chronic disease curve – not behind it.
- Government policy that encourages professional development programs incorporating end of life care so that hospital clinicians, General Practitioners and other care providers feel more confident in providing appropriate end of life care. GPs for example can feel confident and supported in starting end of life conversations with the growing number of patients and their families.
Read more in our 2015 NSW State Election Call to Action document here.
PCNSW Submission to the Voluntary Assisted Dying Bill (2017) NSW
The NSW parliament currently has a drafting committee working on the Voluntary Assisted Dying Bill (2017).
In May 2017, this committee released a discussion paper relating to the bill. In response, Palliative Care NSW made a formal submission to the drafting committee with comments and recommendations.
Our submission is available for download below, along with the initial and subsequent versions of the Bill. We welcome any feedback (click on the Feedback tab for more information).
If you have any comments, please send them to:
Post: Executive Officer, Palliative Care NSW
PO Box 487, Strawberry Hills NSW 2012
This draft was released for public consultation and feedback by the proponents in May 2017. Click on the link below to download.
Following some 72 submissions from interested parties including PCNSW the proponents of the Bill significantly altered the initial consultation draft and released this version about 19 September 2017. Click on the link below to download the revised Bill and related documents.
Palliative Care NSW Policy Statement
The Palliative Care NSW Policy Statement, launched in 2012, has been used to help us to provide informed input to the development of palliative care in NSW.
Our vision is to be the peak body for palliative care to ensure every person in NSW will have access to quality care that addresses their physical, psychosocial and spiritual needs as they approach and reach the end of life. To achieve that vision, PCNSW aims to provide informed and evidence based input into the development of policy at the State and national levels.
To that end, PCNSW released the Policy Statement canvassing the significant challenges in delivering equitable,quality palliative care in NSW, and possible solutions to those challenges.
This Policy Statement reflects feedback received in response to our Discussion Paper, which was released in November 2011.
Palliative Care Australia Policy Statements
We have worked with our state and territory colleagues and with Palliative Care Australia (PCA) to develop policy statements across a range of issues and topics. The views of PCNSW are in accordance with the statements produced by Palliative Care Australia (PCA). PCNSW surveys its members to seek their views when contributing to the development of these statements.
Significant policy documents which can be found on the Palliative Care Australia website at www.palliativecare.org.au include:
- Standards for Providing Quality Palliative Care for All Australians (2005)
- A Guide to Palliative Care Service Development: A Population-Based Approach (2005)
- Position Statements on the following topics:
- Carers and end of life
- Chronic end stage kidney disease
- Culturally and linguistically diverse (CALD) communities and palliative care
- Ensuring quality and safety of end-of-life care
- Euthanasia and physician assisted suicide
- Paediatric palliative care
- Palliative care for Lesbian, Gay, Bisexual, Transgender People and People with Intersex Characteristics (LGBTI)
- Palliative care and neurological conditions
- Palliative care and dementia
- Palliative care and chronic heart failure
- Palliative care and indigenous Australians
- Palliative care and advance care planning
- Palliative Care Australia | Election Statement 2016
- Primary health care and end of life
- Residential aged care and end of life
- Workforce for quality care at the end of life